News
Peggy Ickenroth published on CNN Photos
cnn photos
Mar 14, 2016

Rare disorder causes constant hunger


Every morning, Rick Heijnen prepares his daughter the same breakfast at the same time with the same ingredients: crackers and biscuits, cheese and applesauce, peanut butter, gingerbread, orange juice, buttermilk, water.

To change her routine could mean a major meltdown. To change her diet could be catastrophic.

Suzanne Heijnen has Prader-Willi syndrome, a genetic condition that is estimated to affect one out of 10,000 to 30,000 people. Peggy Ickenroth met Suzanne a few years ago, when she was 12, and photographed her family over a two-week period, hoping to learn more about the disease and how it affects people.

Read the full story 
2,955

Also by CNN Photos —

Media

CNN: Photographers capture their own experiences as mothers

CNN Photos
Events

CNN Photos Open Call for Mother’s Day 2022

CNN Photos
News

Federico Borella published on CNN Photos

CNN Photos
News

Alvaro Laiz published on CNN Photos

CNN Photos
Events Job Listings News Spotlight

The 2016 CNN Year in Photos

CNN Photos
News

Sara Hylton published on CNN Photos

CNN Photos
News

Phillip Jung published on CNN Photos

CNN Photos
News

Steven Edson published on CNN Photos

CNN Photos
News

Furkan Temir published on CNN Photos

CNN Photos
News

Matt Hamon published on CNN Photos

CNN Photos
Awards News

Joan Alvado published on CNN Photos

CNN Photos
News

Charlotte Schmitz published on CNN Photos

CNN Photos
News

Lisa Elmaleh published on CNN Photos

CNN Photos
News

Anne Ackermann published on CNN Photos

CNN Photos
News

Brian Driscoll published on CNN Photos

CNN Photos
Events

CNN 'Pitch & Look' Open Call

CNN Photos
Peggy Ickenroth published on CNN Photos by CNN Photos
Sign-up for
For more access