Annabel Clark

Photographer

www.annabelclark.com

Living with ALS

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Steve, who was diagnosed with A...g her back. For Money Magazine

Steve, who was diagnosed with ALS in 2009, spends mornings with his granddaughter Grace, 2, who has learned to hug him even though he can’t hug her back.
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A home health aide comes 4 hour...al therapy. For Money Magazine

A home health aide comes 4 hours per day to help get Steve ready, a routine that includes bathing him, brushing his teeth, getting him dressed and physical therapy.
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Steve and Pam had the bathroom ...the shower. For Money Magazine

Steve and Pam had the bathroom renovated so that he could be wheeled into the shower.
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Steve uses voice-recognition so... via email. For Money Magazine

Steve uses voice-recognition software to read the news and stay in touch with family and friends via email.
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Steve makes his way downstairs ...or $24,000. For Money Magazine

Steve makes his way downstairs in an elevator, which the couple had to install for $24,000.
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The elevator, which was install...or $24,000. For Money Magazine

The elevator, which was installed in the couples Tudor house for $24,000.
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Pam drives Steve in a minivan t...wheelchair. For Money Magazine

Pam drives Steve in a minivan that has been custom fit to transport his wheelchair.
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Pam takes Steve for walks in th...sed to jog. For Money Magazine

Pam takes Steve for walks in the park where he used to jog.
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Pam takes Steve for walks in to... the ducks. For Money Magazine

Pam takes Steve for walks in town. They stop by their local pet shop to play with the ducks.
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Steve needs a respirator throug...ernoon nap. For Money Magazine

Steve needs a respirator throughout the day to help with breathing. Pam gets him ready for an afternoon nap.
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Steves granddaughter Grace like...wheelchair. For Money Magazine

Steves granddaughter Grace likes to play with his wheelchair.
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Pam feeds Steve his dinner &...ai takeout. For Money Magazine

Pam feeds Steve his dinner – Thai takeout.
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Steve says good night to his da...ighborhood. For Money Magazine

Steve says good night to his daughter and granddaughter, who live in the neighborhood.
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Steve and Pam enjoy watching te...imes a day. For Money Magazine

Steve and Pam enjoy watching television before bed. Steve needs the assistance of a respirator several times a day.
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Steves neighbors come over seve... of a lift. For Money Magazine

Steves neighbors come over several nights a week to help get him into bed with the use of a lift.
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Steve and Pam have spent thousa...accessible. For Money Magazine

Steve and Pam have spent thousands of dollars on medical equipment including a hospital bed, wheelchair, lift and elevator. House renovations cost the couple over $50,000 to make it wheelchair accessible.
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